Sensory overload and disorientation might be the most difficult aspect of Tourette’s to fully explain. How much is due to Tourette’s, comorbidities or other factors, I also don’t know. I often say I’m struggling to see and navigate the world, yet there’s nothing wrong with my eyes. Doctors unfamiliar with Tourette’s tend to investigate overall… Read More Glitching
Today marks the annual Tourette’s Awareness day and I thought this would be a good time to reflect on where we actually are with Tourette’s understanding. Each year many people with Tourette’s and those working with charities like Tourette’s Action UK work hard to raise awareness and try to reduce the misconception and stigma surrounding… Read More Where are we?
People often seem bewildered that it’s not simple to receive treatment for Tourette’s. Firstly, that there isn’t a cure or specific medication we all take and secondly that it isn’t as easy as asking the doctor for help. In the past I’ve been reluctant to share my experience of treatment as I didn’t want to… Read More Treatment
I’ve been trying to update this for a long time but ultimately worsening Tourette’s has stopped me. I’m sure the absence of blogs has been a priority for many people over the last two years. While the pandemic has added a lot of material to cover, the energy spent on dealing with increasingly difficult circumstances… Read More Update
I keep randomly shouting out “write some original material you lazy fucks”. I think I might have Tourette’s comedy Tourette’s. Apologies in advance if this blog offends you and apologies if this blog doesn’t offend you as much as you’d like. The annual “best joke of the Edinburgh fringe” list was just released, with a… Read More Just a Joke
It can be so difficult to describe pain in any condition. The severity, location, type of pain, whether it’s constant or changeable. It can be frustrating when you talk to a doctor on a day when you’re feeling better, or trying to explain to friends that if it wasn’t hurting so much today, you wouldn’t… Read More Pain
Previously I’d assumed the world wouldn’t fall apart if I didn’t update my blog, but it’s getting a little close for comfort. Some day I hope to begin a blog without explaining why it’s taken so long to write another blog, but it at least has some relevance for this one. The physical side of… Read More All In Your Head
I have been asked many times exactly what Tourette’s does to me, how it manifests day to day. There is such a frequent shift in severity, frequency, movements and physical toll that it’s of limited value to produce a simple list. Despite experts suggesting the condition gets better with age, mine has worsened in the… Read More Anatomically Speaking
‘I had no idea, I just assumed you were a bit weird’ said one friend in response to my first blog about living with Tourette’s syndrome. ‘Cheers…and they aren’t mutually exclusive’, I replied. I can’t think of many conditions that have gone from obscurity to part of popular culture for quite such inaccurate reasons. The… Read More Misconception
I Swear It Isn't True 